Diagnoses
Ulcerative Colitis
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Diagnosed March 2019
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Medication(s): Lialda, omeprazole
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Considered to be inactive as of March 2022
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Doctor: Dr. Jeffrey Brown, Lurie Children's Hospital
Primary Sclerosing Cholangitis
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Diagnosed June 2019
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Medications: ursodiol
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Cirrohsis, stage II-III fibrosis, marked splenomegaly, advanced portal hypertension, nonspecific periportal edema, splenorenal shunt (1.5 cm)
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Doctor: Andrea Gossard, Mayo Clinic
Other
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Iron deficiency anemia
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Pancytopenia
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Poikilocytosis: ovalocytes (2+), tear drops (1+), aniso (1+), bite cells (1+)
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Chronic pain (back)
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Straightening of cervical lordosis
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Scoliosis convex left at C7-T1
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Herniated discs: T9-10, T10-11, T11-12, T12-L1
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Facet joint arthropathy: L2-3, L3-4, L4-5, L5-S1
Allergies
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None known; no ferumoxytol brand if iron infusion needed
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No NSAIDS
Emergency Contacts
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Mother: Jennifer Toomey
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Cell: (773) 551-6092
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Father: John Toomey
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Cell: (773) 551-6093
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Primary Care Provider: Niyati Bhandari, Northwestern Hospital
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Phone: (312) 926-6000
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Fax: (312) 926-5971
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Mayo Clinic (Rochester, MN): Andrea Gossard
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Phone: (507) 284-2511
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Fax: (507) 284-9886
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Take to the ER if:
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Has sustained medium or high contact injury to spleen or liver areas
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Skin looks yellow (jaundiced), gray, or green
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Showing signs of hepatic encephalopathy (confused and disoriented, incoherent speech, aggressive behavior, seizures)
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Non-responsive
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If you take to the ER or are worried, please call at least one parent listed in the Emergency Contacts list.
Preferred Hospitals:
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Chicago, IL: Northwestern Memorial Hospital
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Rochester, MN: The Mayo Clinic
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Boston, MA: Brigham and Women's Hospital
These hospitals already have all records on file and will be the most helpful and best able to administer treatment in the case of an emergency.